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  #1  
Old 05-15-2008, 05:16 PM
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Hospice

Has anyone here had any experience with hospice? I am talking to the hospice people here about a family member.

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Old 05-15-2008, 05:29 PM
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Originally Posted by Dee8go View Post
Has anyone here had any experience with hospice? I am talking to the hospice people here about a family member.
Check with medicare first. In some cases they will not help pay for a hospice but will pay for a nursing home.
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Old 05-15-2008, 05:40 PM
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Dee8go, what exactly is the condition of the patient? What are you hoping to achieve with the patient's case? If you don't want to post it here, PM me. The wife works with hospice people so perhaps I can forward your questions to her.
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Old 05-15-2008, 06:29 PM
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She is terminally ill and is getting to the point of no longer being able to take care of herself. Probably within 2-3 months of dying at this point. There is nothing left to be done treatment wise.

The hospice folks said that in her case Medicare would pay for her hospice care 100%. It still allows her to live at home and as much freedom to do things as she is able to exercise. I couldn't see any downside to it after talking to them.
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Old 05-15-2008, 06:37 PM
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My aunt had hospice care for almost 3 weeks - they were great. Their ability to predict how much longer my aunt had to live was uncanny - and thank goodness so....we were able to make some arrangements with her, before she became too weak to speak.
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Old 05-15-2008, 06:37 PM
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A friend of mine used to run a local non-profit one. A good, compassionate man.
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Old 05-15-2008, 06:54 PM
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Originally Posted by Dee8go View Post
She is terminally ill and is getting to the point of no longer being able to take care of herself. Probably within 2-3 months of dying at this point. There is nothing left to be done treatment wise.

The hospice folks said that in her case Medicare would pay for her hospice care 100%. It still allows her to live at home and as much freedom to do things as she is able to exercise. I couldn't see any downside to it after talking to them.
In WI, they only have to be there a certain number of times. OTOH, they sell it as them being there 24X7. This is the 2nd time in the last 2 weeks that my wife has had to threaten them that if they don't show up, she will never recommend them again. Because of their lack of presence, the wife had to spend all day with the family and was unable to do her own work.
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Old 05-15-2008, 07:01 PM
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Has anyone here had any experience with hospice? I am talking to the hospice people here about a family member.

Truely remarkable and caring people. What more can one say? Make a donation to their organization. They really earn their keep in doing what they do.
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Old 05-15-2008, 09:22 PM
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Had two seperate experiences. First "team" (teams are a certain group that handle a certain area) sucked. Could hardly get the time of day out of them; nevermind any meaningful care. The second team (moved out of first team's area) was WONDERFUL. Very caring and professional. If you get a group you feel is not doing their job, let someone know! I wish I had reported the conduct of the first team to the higher-ups of their organization; I didn't, and regret it to this day. I moved(with my dying father) and we got the great second team. I chaulked up the first team's actions (rather their 'lack of actions') as just part of the entire experience of a loved one slowly dying.
I think you should support their efforts as an organization. All-in-all they are a great group.
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Old 05-16-2008, 09:02 AM
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Has anyone here had any experience with hospice? I am talking to the hospice people here about a family member.
Yes but I don't know any of the details. My MIL spent about 4 hours in hospice. We were down visiting the day before and she was up and about, even though not feeling great (she had been battling a vicious form of breast cancer for just over a year). She didn't wake up the next morning and the visiting nurse suggested that it was probably time to go to get her comfortable. The ambulance brought her there about 9AM, with my wife by her side the whole time while family members came to say their goodbyes. My wife had to make a restroom run so we left about 1PM and wouldn't you know it, my MIL decided it was "time" after my wife left the room.

I know my FIL made comments about how expensive it was for the time they were there but we've never asked him. They really did do a great job of making an awful day as comfortable as it could be.
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Old 05-16-2008, 09:11 AM
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Thanks for your comments. I guess different hospice operations are just like anything else, some good, some not so good. Most people don't realize that most of the time you're in your own home, not their facility. In fact you might not even go to their place at all. They do offer a lot of support to the family as well as the patient.

Unlike in hospitals and nursing homes where the closer you are to death the less human contact you have, the hospice increases that contact. I can't imagine dying alone or letting anyone I loved die alone.

Thanks again.
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Old 05-16-2008, 09:41 AM
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I have also seen extremes in levels of care and concern. Sometimes they are wonderful, other times they just go through the motions. Try to meet with more than one. If it works, its a great thing.
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Old 05-16-2008, 09:44 AM
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Has anyone here had any experience with hospice? I am talking to the hospice people here about a family member.
Just did earlier this year and I'll be glad to visit about my experiences. See your PM.
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Old 05-16-2008, 09:53 AM
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Went through this with my mother almost exactly a year ago. Like folks have said, some groups are better than others. Some times a group may "own" an area. Group we had was pretty good. It is a tough time for all. I like the fact that my mother left this world from her daughter's home with her whole family around her. God bless and keep all of you through this time. You can PM me if you need any details.
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Old 05-16-2008, 09:56 AM
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Being in her own home is important to her, so I think that will be one of the major benefits to this. Plus, having people who are familiar with the dying process to "hold our hands" through this will be a big help.

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