Parts Catalog Accessories Catalog How To Articles Tech Forums
Call Pelican Parts at 888-280-7799
Shopping Cart Cart | Project List | Order Status | Help



Go Back   PeachParts Mercedes-Benz Forum > General Discussions > Off-Topic Discussion

Reply
 
LinkBack Thread Tools Display Modes
  #1  
Old 03-07-2014, 01:01 PM
JiveTurkey's Avatar
Nicht verantwortlich
 
Join Date: Sep 2009
Posts: 911
Any other Ehlers Danlos Disorder sufferers amongst us?

I found out about a year ago I suffer from this genetic disorder and it's really starting to wear me down. I was wondering if anyone else on here has it?

Reply With Quote
  #2  
Old 03-07-2014, 01:49 PM
MTI's Avatar
MTI MTI is offline
Registered User
 
Join Date: Nov 2002
Location: Scottsdale, Arizona
Posts: 10,626
What are the perks?
Reply With Quote
  #3  
Old 03-07-2014, 01:51 PM
Skid Row Joe's Avatar
Banned
 
Join Date: Oct 2007
Location: #KeepingAmericaGreat!
Posts: 7,071
Quote:
Originally Posted by JiveTurkey View Post
I found out about a year ago I suffer from this genetic disorder and it's really starting to wear me down. I was wondering if anyone else on here has it?
What is your age, and how does this disorder manifest itself in it's victims?
Reply With Quote
  #4  
Old 03-07-2014, 02:14 PM
nate300d's Avatar
What did I just do?
 
Join Date: Mar 2007
Location: Edgerton OH 43517
Posts: 366
Quote:
Originally Posted by JiveTurkey View Post
I found out about a year ago I suffer from this genetic disorder and it's really starting to wear me down. I was wondering if anyone else on here has it?
I had not heard of this before. I had to look it up. Sorry that you have this.
__________________
Current:
1985 300D aka Miss Margaret
1991 300SE aka Alarice
1995 SL320 aka Samantha
1997 K1500 Silverado
Past:
1999 E300 ex-wife got it and let her son ruin it
1984 190 2.3 ex-wife got it and let her son destroy a great car
1985 300D (CA version) aka Maybelline lost to deer at high speed.
1981 300D aka Madeline (went to salvage at near 400k) rusty, yet best car I ever drove
Wishlist:
McFarlan TV6 (only a few privately owned)
ReVere with Rochester engine
1917 Premier (only one left)
Reply With Quote
  #5  
Old 03-07-2014, 02:14 PM
waterboarding w/medmech
 
Join Date: Feb 2006
Location: Coming to your hometown
Posts: 7,987
Ehlers

Sounds like a bad thing to have. My sympathies...
Reply With Quote
  #6  
Old 03-07-2014, 04:21 PM
Mölyapina's Avatar
User title not in use
 
Join Date: Oct 2012
Location: Chelmsford, Massachusetts
Posts: 4,373
Aye, aye -- type 3 here! Thankfully I've found out early so that I can work on strengthening to hopefully ward off joint injuries for a longer time. My mother has had major joint problems and surgeries ever since the age of 30 and has lived in constant pain for many years now . Motivation for me to do my excersizes (not that she didn't do them -- we only found out last year).

What type are you?
__________________
"Senior Luna, your sense of humor is still loco... but we love it, anyway." -rickymay ____ "Your sense of humor is still loco... " -MBeige ____ "Señor Luna, your sense of humor is quite järjetön" -Delibes

1982 300SD -- 211k, Texas car, tranny issues ____ 1979 240D 4-speed 234k -- turbo and tuned IP, third world taxi hot rod

2 Samuel 12:13: "David said to Nathan, “I have sinned against the Lord.” And Nathan said to David, “The Lord also has put away your sin; you shall not die."
Reply With Quote
  #7  
Old 03-07-2014, 05:01 PM
JiveTurkey's Avatar
Nicht verantwortlich
 
Join Date: Sep 2009
Posts: 911
Quote:
Originally Posted by Jooseppi Luna View Post
Aye, aye -- type 3 here! Thankfully I've found out early so that I can work on strengthening to hopefully ward off joint injuries for a longer time. My mother has had major joint problems and surgeries ever since the age of 30 and has lived in constant pain for many years now . Motivation for me to do my excersizes (not that she didn't do them -- we only found out last year).

What type are you?
I've got the clinical diagnosis, but I'm waiting to find out if it's type four. Physicians being what they are I have to wait until JULY 9th until they can be bothered to biopsy me.

Most of my life I knew I was "double jointed" in odd places, where the humerus interacts at the shoulder, the heads of both femurs, ankles. Now I know that it's not double jointed ness but actual dislocations taking place.

I have had a few injuries that exacerbated my pain. I have broken both feet, three twist fractures on the left in the metatarsals (long bones) and an avulsion/Jones fracture of the fifth metatarsal on the right. Dec 25th of last year I had mesh repair surgery done for three hernias.

To put it bluntly it never feels like any two parts of my body are in the same place on two different days. I am 6'4" and weigh 200 pounds, I exercise regularly, but the pain in the last three years has been ramping up dramatically. I try to golf regularly but didn't play from '07 through '13 because I had frankly given up in ever being able to play again.

Suffice it to say this disease has changed my outlook on life.
Reply With Quote
  #8  
Old 03-09-2014, 01:55 AM
BodhiBenz1987's Avatar
Registered User
 
Join Date: Dec 2004
Location: East Coast
Posts: 3,005
Sorry to hear you have to suffer through all that. I've always wondered if I have EDS or something similar, or if I'm just a regular flexible person. I started having severe pain issues/neuritis in college and was told it had to do with hypermobility, but after a lot of physical therapy that particular episode subsided over the course of a couple years and it hasn't been that bad since. I still get a lot of pain in my sacroiliac joints, which I can feel and hear move around a lot, and get a lot of unexplained pain, popping and locking in other joints. But no major dislocations. I've also had some recent idiopathic dysautonomia ... gastroparesis and hypotension/orthostatic hypotension, diagnosed three years apart. Plus I'm very myopic, elastic skin, heart murmur (no mitral valve prolapse though), etc. I suspect I'm just flexible (as opposed to a genetic disorder), and anyone flexible is going to have more wear and tear than the average person. My ankles, knees and SI joints in particular ... doing physical therapy now so hopefully that's all I need.
Anyhow, as a result of just being curious about it, I've read a lot on EDS and Hypermobility Syndrome and realize how much worse other people have than me. JiveTurkey, I hope you can get a final answer on your diagnosis and have a specialist help you find a way to cope with it. And Jooseppi, I hope knowing what you're dealing with and doing the phys therapy helps you ward off the problems your mom had.

__________________
1987 300D, arctic white/palomino--314,000 miles
1978 240D 4-speed, Euro Delivery, light ivory/bamboo--370,000 miles
2005 Jeep Liberty CRD Limited, light khaki/slate--140,000 miles
2018 Chevy Cruze diesel, 6-speed manual, satin steel metallic/kalahari--19,000 miles
1982 Peugeot 505 diesel, 4-speed manual, blue/blue, 130,000 miles
1995 S320, black/parchment--34,000 miles (Dad's car)
Reply With Quote
Reply

Bookmarks

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is On
Trackbacks are On
Pingbacks are On
Refbacks are On




All times are GMT -4. The time now is 06:11 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0
Copyright 2024 Pelican Parts, LLC - Posts may be archived for display on the Peach Parts or Pelican Parts Website -    DMCA Registered Agent Contact Page