Sorry to hear you have to suffer through all that. I've always wondered if I have EDS or something similar, or if I'm just a regular flexible person. I started having severe pain issues/neuritis in college and was told it had to do with hypermobility, but after a lot of physical therapy that particular episode subsided over the course of a couple years and it hasn't been that bad since. I still get a lot of pain in my sacroiliac joints, which I can feel and hear move around a lot, and get a lot of unexplained pain, popping and locking in other joints. But no major dislocations. I've also had some recent idiopathic dysautonomia ... gastroparesis and hypotension/orthostatic hypotension, diagnosed three years apart. Plus I'm very myopic, elastic skin, heart murmur (no mitral valve prolapse though), etc. I suspect I'm just flexible (as opposed to a genetic disorder), and anyone flexible is going to have more wear and tear than the average person. My ankles, knees and SI joints in particular ... doing physical therapy now so hopefully that's all I need.
Anyhow, as a result of just being curious about it, I've read a lot on EDS and Hypermobility Syndrome and realize how much worse other people have than me. JiveTurkey, I hope you can get a final answer on your diagnosis and have a specialist help you find a way to cope with it. And Jooseppi, I hope knowing what you're dealing with and doing the phys therapy helps you ward off the problems your mom had.

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1987 300D, arctic white/palomino--314,000 miles
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